The PAEDS network comprises The Children's Hospital at Westmead, Sydney; Royal Children's Hospital, Melbourne; Women and Children's Hospital, Adelaide; Princess Margaret Hospital, Perth; Lady Cilento Children’s Hospital, Brisbane; and Royal Darwin Hospital, Darwin. The PAEDS Coordinating Centre is based at the Kids Research Institute at The Children’s Hospital Westmead, where NCIRS and APSU are co-located.
Dedicated and experienced research nurses are employed specifically to conduct PAEDS surveillance work at each PAEDS hospital site. PAEDS nurses scan emergency department and hospital admission records and other sources, such as microbiology and radiology records, each day to detect cases that potentially fulfil the criteria for the conditions under active surveillance. Nurses obtain consent for inclusion of the child’s details in PAEDS during or shortly after the child’s hospital presentation and we have a very high consent rate. Clinical data and immunisation history, verified on the Australian Childhood Immunisation Register (ACIR), relevant to the child’s condition are recorded in a de-identified way in a national PAEDS-specific web-based data management system (WebSpirit).
PAEDS investigators at each site clarify clinical case presentations and liaise with hospital clinicians and laboratories to ensure surveillance data collected is optimal. Epidemiologic analysis is routinely conducted to review and answer study questions on each condition. Where relevant, clinical specimens taken for patient management may be analysed further, such as for genotyping of varicella-zoster virus and Bordetella pertussis. All PAEDS investigators meet monthly via teleconference and an annual 2-day face-to-face meeting is held each year.
The following personnel are directly involved in PAEDS:
Investigators: Associate Professor Kristine Macartney, Associate Professor Nick Wood, Professor Robert Booy, Professor Elizabeth Elliott, Professor Peter McIntyre, Dr Philip Britton, Professor Cheryl Jones, Dr Helen Quinn
Network manager: Jocelynne McRae
Surveillance nurses: Laura Rost, Gemma Saravanos, Nicole Dinsmore, Kathy Meredith
Advanced Trainee: Dr James Bao
PhD student: Samantha Carlson
NSW Immunisation Specialist Service (NSWISS)
Investigators: Associate Professor Jim Buttery, Dr Nigel Crawford, Professor Allen Cheng
Surveillance nurses: Alissa McMinn, Donna Lee, Julie Quinn
Investigators: Professor Peter Richmond, Associate Professor Christopher Blyth, Dr Tom Snelling
Surveillance nurses: Jennifer Kent, Cazz Finucane, Rachel West
Investigators: Associate Professor Mike Gold, Associate Professor Helen Marshall
Surveillance nurses: Chris Heath, Mary Walker
PhD student: Bing Wang
Investigators: Associate Professor Julia Clark, Dr Anne Kynaston, Dr Natalie Phillips
Surveillance nurse: Sonia Dougherty
Investigators: Dr Joshua Francis
Surveillance nurse: Heather Cook
PAEDS is privileged to work with several associate investigators, collaborators and contributors.
PAEDS is overseen by the PAEDS Reference Group which includes representatives from all participating state health departments and independent expert groups.
The Group was formed in 2013 to provide guidance on priority conditions for surveillance, potential synergies and collaborations with other surveillance schemes. This group also provides feedback on PAEDS network outputs, including translation of surveillance and research findings into policy and practice.
Members of the PAEDS Reference Group attend the PAEDS face-to-face meeting annually in Sydney.